Adults with cognitive impairment are often excluded from research due to concerns about decision-making capacity. Advance research directives (ARD) are a tool for people to document their wishes about research participation in the event of incapacity. While the legal status of ARDs varies, there is support for the principle that prior documented wishes should inform future decisions about research participation.
The webinar discusses the developing body of research that investigates stakeholder perspectives on ARDs and strategies for implementation. An ARD form and guidance booklet will be shared. These resources were developed with input from dementia researchers and public/patient representatives.
Release Date: March 2, 2023
Language Availability: English
Suggested Audiences: IRB Administrators, IRB Directors, IRB Members, Researchers
Organizational Subscription Price: $300 per year/per site or included as part of an annual subscription to our All Access Webinar Package
Independent Learner Price: $49 per person