Research Ethics for All (RE4All)

Provides community research partners with disability-accessible education on ethical issues in social and behavioral research.

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About this Course

Research Ethics for All (RE4All) is an accessible online course designed for community research partners with developmental disabilities who collaborate on social and behavioral research. The course introduces how scientific and community-engaged research works, the history and rules that protect people in research, and the roles community partners play on research teams. Learners explore key topics such as recruitment and informed consent, participant safety, privacy and confidentiality, and responding to ethical concerns. The course also emphasizes the rights of community research partners, including authorship, shared decision-making, and respectful collaboration. RE4All equips learners with practical knowledge to participate confidently, ethically, and safely in research partnerships.

Research Ethics for All was made by people with developmental disabilities, disability service providers, researchers, and IRB administrators and members.

Research Ethics for All was funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (EASC-IDD-00301. Co-Leads Katherine McDonald and Ariel Schwartz).

Language Availability: English

Suggested Audiences: Community Research Partners

Organizational Subscription Price: Included with Human Subjects Research series, available as part of an organizational subscription package or for $1,000 per year/per site for government and non-profit organizations; $1,200 per year/per site for for-profit organizations
Independent Learner Price: N/A


Course Content

Community-Engaged Scientific Research

This module discusses scientific research and community-engaged research. It provides an overview of research with people, jobs of different people on a research team, and ways community research partners can make research better.

Recommended Use: Required
ID (Language): 22321 (English)
Author(s): Katherine McDonald, PhD - Syracuse University; Ariel Schwartz, PhD, OTR - University of New Hampshire

History of Scientific Research with People and Rules

This module explains the history of research with people, rules for scientific research with people, and the concept of vulnerability. It describes why there are rules for research with people and the rights of research participants.

Recommended Use: Required
ID (Language): 22322 (English)
Author(s): Katherine McDonald, PhD - Syracuse University; Ariel Schwartz, PhD, OTR - University of New Hampshire

Getting People Involved in Research

This module describes recruitment, consent, and assent in research. It explains the importance of using Institutional Review Board (IRB)-approved recruitment and consent materials; following eligibility criteria; and working with people with and without guardians to make informed, voluntary, and ongoing decisions about being in a research study.

Recommended Use: Required
ID (Language): 22323 (English)
Author(s): Katherine McDonald, PhD - Syracuse University; Ariel Schwartz, PhD, OTR - University of New Hampshire

Keeping Research Participants Safe CME/CEU Badge

This module discusses risks and safeguards, privacy and confidentiality, and breaking confidentiality and mandatory reporting. It describes how to keep research participants safe and what to do when there is information that cannot stay confidential.

Recommended Use: Required
ID (Language): 22324 (English)
Author(s): Katherine McDonald, PhD - Syracuse University; Ariel Schwartz, PhD, OTR - University of New Hampshire

Community Research Partner Rights CME/CEU Badge

This module covers keeping community research partners safe, being an author, and sharing findings. It discusses ways to protect the rights and well-being of people who are in research and community researchers, team rules, and authorship considerations.

Recommended Use: Required
ID (Language): 22325 (English)
Author(s): Katherine McDonald, PhD - Syracuse University; Ariel Schwartz, PhD, OTR - University of New Hampshire


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